Hi, thank you for your interest in Suvir’s story. I am Neesha, a mother to two beautiful boys, Rihaan and Suvir. My husband Sunay and I, along with the boys live in New Jersey, USA. My younger one, Suvir is a special needs baby and holds the key to all our hearts. Born in June-2017, Suvir has had quite a journey and he has taken his family along for the ride. This blog is my attempt to detail this journey and share his story. I also hope to connect with parents of other special needs children and be a resource/support to them.
suvirstory.com 
Neesha, you are very brace!! And so too is Sunay. My heart goes out to the two of you!
You are very right about “ripples”; and not being able to see that for your family. I feel the same way with my condition. How my affliction affects my husband Ketan, son Neel and his family!
People give encouragement in well meaning fashion but only you and Sunay know that it rarely helps on a bad day. I have found that talking and meeting others who are going thru the same situation are going to be your very best friends!!
So this blog will probably be a salvation for you and Sunay . ❤️❤️
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Thank you Mami!
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Hi Neesha. I read & re read your blog. I am speechless. while reading i could feel ur & Sunay’s pain anger confusion & last but not least denial of what was happening to your lovingly woven family. Yes i completely agree life can really flip. Any mother can connect & feel the pain. I still remember nishmin was 11 mnths old & was operated for an abscess below her knee & than the wound dint heal due to that quack Dr. Me & Jal went from Dr to dr & ultimately I stood in the middle of the road & cried out of frustration & pain of my little one. So can imagine & feel ur anger helplessness & frustration of unable to hold him nurse him or cuddle him when he cried. For me Sunay is still that small shy boy. When did he grow up to this strong matured man sheltering his family from all pain & hardships. I have known him to become quite when disturbed or upset. Sunay my Heart goes out to ur predicament wther to console Neesha or protect & shelter ur new born Suveer forgetting about ur pain for the present. I am tounge tied . Though have not seen My little nephew i cried with each sentence & photo. My tiny warrior nephew imploring me with his beautiful big black eyes. If photos & blog can have this effect over me I can imagine the anguish of you Neesha & 2 pair of grand parents who stayed with him & worried about his health. Neesha the description of ur delivery & u holding sunay & nurse’s hand while the team of dr’s incubated Suveer is too painful…Every description at times makes you cry or feel helpless..
2 photos of you with Suveer sleeping on ur shoulder & the other one when rihhan came to meet u & is sleeping with his head turned on you are very emotional. I can see the tranquility & peace & satisfaction of a mother on ur face. wish to write a lot but words are insufficient to express my grief for this loss. Tell Sunay Being strong is the only option though my Heart questions to Almighty why ?
I hve posted both photos on masi ‘s whats app . I wish I could have once heard foi from my little nephew…. Take care
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